Book: - Course Handbook: Communication and care-giving in dementia: a positive vision


Course Handbook: Communication and care-giving in dementia: a positive vision
(notes to accompany the course and DVDs filmed with family carers)

by Dr. Gemma Jones

(The Wide Spectrum Publications, Sunningdale, 229 pages)













 This book can be used on its own, and also with the DVD set. It is arranged with:

. an introductory chapter discussing the assumptions, vocabulary and metaphors used, a chapter to accompany each DVD, in order
. more advanced and supplementary materials contained in appendices
. additional notes for educators at the end of the book

“The material on communication (asking good questions - brilliant ) and grieving and guilt is priceless
and not available elsewhere." - Dr. David Wilkinson (Old Age Psychiatrist, Founder of the Memory Assessment and Research Centre, Southampton, U.K.)


“Anyone wishing to know how dementia affects people, and how they and their families may be helped, should experience Gemma Jones’ specialist course. Dr. Jones’ academic writing is easy to understand and illuminating. All those who are committed to an involvement with dementia would benefit from her series of lessons.” - Derek Ball (Journalist and public relations consultant working with people with dementia, their families and professional caregivers, U.K.)


“Seeing the responses of the family carers on the DVDs attests to the importance of understanding their perspective, providing timely support and education for them, and creating real care partnerships with them. I am recommending this course to everyone interested in dementia.” - Josephine Hemsted-Martensson (Retired Chair of the Board of Directors, Soldiers’ Memorial Hospital, Orillia, Ontario, Canada)


“I’m better equipped to answer the [help-line] phone now. I have new insight into what the carers are saying.” - (Course participant, Helpline Respondent for an Alzheimer Society Branch, U.K.)


"The information about the sensory changes, staging and verbal communication has been good...I’m not good at communicating... and it could be long innings still. The course was great”. - (Course participant, Husband, age ~55)

“Inspiring! It’s much more hopeful and positive than I thought it could be; it gives me real hope for the future.” - (Granddaughter,A level student, age ~18)


“I am considering changing my field of studies to something dementia-related on the basis of having seen this material.” (A level student, age ~ 18)

“ It’s been a steep learning curve the past four years’. I like the stage-specific, dementia-specific vision. It helps to understand; also to make an informed evaluation of the care my wife receives.” (Course participant, Husband, age ~ 80)

"[The course] has been fantastic in terms of putting my knowledge into perspective…’s humbling how little I knew…I thought I knew it all….I’ve new incentive and motivation to improve my care.” - (Course participant, Son, age ~60)

“I’ll enjoy my visits better now. I’ve learnt to try to be more patient and to try to understand.” - (Course participant, Daughter, age, ~45)

“As a carer and professional, this [course] has helped me cope with my own emotional responses.” - (Course participant, Daughter and Nurse, age ~50)

“I had a good relationship with my Nan….now, by understanding, I can have it back again.” - (Course participant, Granddaughter, age ~19)

"My wife is at the end of stage 4. You’ve described her journey exactly in detail. Next time I visit her I’ll bring hand crème, a CD of her favourite tunes, and I’ll try to sing. I hope she’ll look up with wide eyes." - (Course participant, Husband, age ~78)

"I've done a lot of what we've discussed intuitively but didn't know if they were the best things to do, or if there were other options. This course has given me a broad overview... helped me understand why some things work better than others and how to adapt approaches for different stages of the illness." - (Course participant, Daughter, age ~35)